The Wall Street Journal recently highlighted a new trend where hospitals are creating special clinics to coordinate care for the close to three million U.S. children suffering from complex medical conditions (CMC) who will often require a lifetime of care.
Dr. Jay Berry, a physician and researcher in the Complex Care Service at Boston Children’s Hospital and assistant professor of pediatrics at Harvard Medical School, points out the difficulties providers face in caring for children with CMC:
Care for these kids is unbelievably time-consuming and labor-intensive, and there is no way in the current system there is enough financial incentive for providers to do this. The success stories are the ones where some hospital, health system or payer has stood up and said, ‘We are going to pay for this.’
A proposed bill, the Advancing Care for Exceptional Kids Act of 2015, would create nationally designated children’s-hospital networks to coordinate care and services for medically complex children on Medicaid. Proponents estimate that, if it passes, it could improve the quality of care while saving $13 billion over 10 years.